Hi! My name is Robyn, and I’m an epileptic from Maryland, and this is my story. My story begins on the evening of December 30th, 2015. I was going into the kitchen, and then face planted between the kitchen and the family room. Apparently I had a seizure, but don’t remember anything after that. One of my parents called 911 and the next thing I remember is waking up in back of an ambulance going to the hospital. I only remember bits and pieces of being in the emergency room, so I’ll just tell you what I do remember. I remember being moved from the gurney to a bed, I remember being brought in for a CAT scan, I remember the guy that took me, and I especially remember leaving the hospital.
Fast forward to a few days later my mom was looking into neurologists, and called my granddad (her dad) for some help. Since he used to on the board at Johns Hopkins, he used some of his contacts which lead us to The First Seizure Clinic at Johns Hopkins. There, I had an EEG and a doctor’s appointment. I had an MRI done on January 10th, 2016. Then, five days later, I was diagnosed with Juvenile Myoclonic Epilepsy, a lifelong seizure disorder. I’ve had four more several more seizures since being diagnosed. But I do make the best of it, though. Like I participate in Special Olympics Maryland and Best Buddies.
Epilepsy may affect my life, but it doesn’t get to determine how I live it. I do!
Footnote: I’ve also got ADHD/ADD that I had way before I was diagnosed with epilepsy.
Epilepsy Foundation, has a great resource page just for young adults with epilepsy, and a Toll-Free Helpline: 1-800-332-1000 (en Español 1-866-748-8008). Calls are answered 24 hours a day, 7 days a week.